Admin
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Post by Admin on Aug 16, 2005 0:32:49 GMT 10
Everyone... Well Little Miss Kaedy is on her way to San Antonio for her surgery. Here is a couple updates from Kahri. Please keep this family in your prayers. **Well we are on our way to San Antonio tomorrow morning. We have to be at the hospital at 9:00 and we will be leaving Tulsa on the air-ambulance about 10am. A friend of mine is lending me a laptop so I will be able to keep you updated. (thank you so much Mel!!!) I will let you all know how things are going as often as I can. Thank you for your prayers and your thoughts. Receiving a multitude of Blessings and expecting nothing less than a miracle,***** and here is the update letting us know of their arrival. ***We are here in San Antonio and doing well!! We had an uneventful trip on the lear jet yesterday...Kaedy slept the whole time (she was drugged up!). It was a very nice flight. We got to the hospital a little after noon and got Kaedy settled in. She had a few tests done yesterday and a few more done today. She has wrapped everyone around her finger (of course) and is laughing, smiling, kissing and shaking her head "no" like usual! She does have a bit of exciting news...she got a new tooth yesterday! Three teeth total now! We are going to the hospital at 9 in the morning because we don't know when our consultation is tomorrow. Hopefully it will be fairly early so we are not sitting around all day wondering what is going on. I will be updating our blog very soon (not tonight) to give all the "little" details that make the story so much more enjoyable. LOL kahri.blogspot.com/ thanks for all of your prayers and thoughts! We appreciate them! We will update you as soon as we know anything!!! Blessings, Kahri ************ Also a picture of the beauty...  Thanks for praying for Kaedy. I will update you all as Kahri updates me. |
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Admin
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Post by Admin on Aug 17, 2005 0:18:41 GMT 10
Update From San Antonio~August 15, 2005
*************
Well Kaedy finished all her tests here in San Antonio today. We talked to 3 doctors - Dr. Campbell, the orthopedic surgeon; Dr. Smith, the general surgeon; and Dr. Pinero, the pulmonologist. They were all very nice and they all were very impressed with Kaedy: her size and her development.
The doctors had lots of good things to say today:
1. they are saying Kaedy does not have Jarcho Levin
2. they think that she just has a few anatomical anomalies that caused some other problems.
3. they say it is not genetic, that it would be extremely unlikely to have any other children with this
4. they think she will soon be off the vent
We did find out that she has a herniated large intestine. They are planning on moving that back to where it belongs tomorrow during surgery.
Although the doctors would not say today whether or not Kaedy had been officially accepted into the titanium rib project, they all said (at one time or another) that she would have surgery tomorrow. They are supposed to give us the final word early in the morning and they are planning on taking her into surgery about 7am.
They are planning on doing the following things: (which could change during surgery)
1. taking two ribs from the right side to stabilize the left side.
2. implanting two VEPTR rods (the titanium ribs) - both on the left side, one close to the spine, one closer to underneathe the arm.
3. fixing the herniated intestine
4. detaching the diaphragm and reattaching it lower down
It is supposed to take approximately 5 hours.
That is all we know right now in the physical realm. However, we know the TRUTH and the truth is that she is healed.
The verse we have been standing on all along is Luke 8:50. "Do not be afraid, just believe, and she will be healed." We ARE NOT afraid and we completely believe that she IS healed. Thank you for agreeing with us about this and for your prayers. We praise God for her healing and that she is restored from head to toes. God is a good God...ALL THE TIME. He is not responsible for this, but we know who is....and he has been found out, ousted and owes us back the previous 9 months. HALLELUJAH!!! Please join us in thanking Him for her healing...
Having received Kaedy's miracle, in Jesus' precious name,
Kahri
*************
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Admin
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Post by Admin on Aug 18, 2005 1:24:47 GMT 10
Thank you all for your faithful prayers! Kaedy had a very smooth surgery with no problems. In fact, the nurse walked out and said that "God must be smiling down on this baby." (of course we KNOW that!!!) These are the things they did for her: 1. They moved one rib from the right side to the left side 2. They moved the bottom ribs on her left side up to where they belong. 3. They detached her left side diaphragm and reattached it in the proper place. 4. Two titanium ribs were put in on her left side. 5. Her intestinal hernia was fixed The doctors were very happy with the results. They are expecting her to come off of the ventilator before Christmas, but we are expecting it much quicker than that! :-) We have no information about how quickly we can get out of here, they said it just depends on her and how quickly she can come off of all the tubes and get back on her own ventilator. We are expecting supernatural recovery and a return trip soon! Best case scenario looks like about 3-4 days. Lots of people have been asking if she would come home or go back to St. John's in Tulsa. The plan is for her to leave here and return to the hospital in Tulsa. She would stay there approximately a week and then she would COME HOME!!!!!!! HALLELUJAH!!!! Please join us in thanking God for her supernatural recovery and the fact that she will be home soon!!! I have another praise....several months ago a wonderful woman from ORU came to visit Kaedy - Sue Jester. One of the things we talked about was how to pray for the surgery. She counseled me to start praying then for spirit-filled people all around Kaedy down here in San Antonio. Our pilot on the way down was spirit-filled and so was the OR nurse today. I told the nurse, we have been praying for you to be here today for a loooong time. It was wonderful to share prayers with these people and the OR nurse even annointed Kaedy before the surgery as well....I felt awesome that she was in there during the surgery, speaking words of life over our precious baby. Here are the pictures so far from our trip...they include pictures of Kaedy after the surgery but we don't have pictures of the xrays yet. We will try to get those so we can show you the amazing differences. I put these pics on OFOTO since we are away from home. There are three different sets... www.kodakgallery.com/I.jsp?c=ww11agb.26kxs603&x=0&h=1&y=-w0mp2p www.kodakgallery.com/I.jsp?c=ww11agb.1ony6ter&x=0&h=1&y=-5e6x05 www.kodakgallery.com/I.jsp?c=ww11agb.59sztplv&x=0&h=1&y=d4xo28 |
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Deed
Treasured
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Post by Deed on Aug 18, 2005 3:30:55 GMT 10
Woo Hoo!!! Wonderful news! ;D I just know little Kaedy will be home in no time, she sure is a fighter!  Sending lots of good thoughts your way Kahri for Kaedy, you and your whole family!  |
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Post by ellise on Aug 18, 2005 4:20:36 GMT 10
 Tears of happiness are streaming down my face as I read this and Khari's Blog (part of it). I am so happy for you and your family Khari, and so thankful that you guys stood firm in your faith. To have belssings like these is truly a miricle. Praise the Lord! God bless you and your family.
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Admin
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Post by Admin on Aug 18, 2005 5:04:30 GMT 10
Isn't it just awesome news of little Kaedy. I hope you all took the time to read Kahri's blog and to look at the pictures of little miss Beautiful Kaedy. Isn't she something...
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Post by ellise on Aug 18, 2005 6:27:49 GMT 10
She is beautiful! God has something really special planned for that baby that's for sure! What a blessing thst she is healed! Oh I just can't stop rejoicing!
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Admin
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Post by Admin on Aug 21, 2005 4:29:47 GMT 10
Kaedy is still heavily medicated although they have taken most of her sedation away and just left pain control. She completely slept Wednesday and most of yesterday. Today she was awake a little longer but was in pain on and off so we had them give her more meds to calm her down and let her relax. They say she is doing well and they are happy with her progress.
We just found out today that although they had seen each of these problems before, they had never seen them in one child, much less fixed them all at once. They are considering this a "miracle" surgery (even from THEIR point of view!!!).
Because they basically rearranged all of her innards, they say it will take a little longer for her to recover. I am really hoping we will be coming home by Tuesday or Wednesday, but they haven't given us any idea yet. They did say I could probably hold her starting Sunday. Right now it seems scary to think of it. I can see her move and it hurts her and I can't imagine moving her on purpose!!! They started feeding her today, but they are going about it very slowly since part of the surgery was on her intestines. She is tolerating it very well, though.
My mom came yesterday and will be keeping me company after Michael goes home tomorrow.
Thank you for all of your prayers!!
Blessings,
Kahri and Michael
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Post by lucie on Aug 22, 2005 4:01:31 GMT 10
Oh what a courageous little girl! I am happy she is doing better but I am sad that she has to go through all this. I have been praying for her and will continue to pray for her so she can home very soon. 8-)Much love and courage I send to her parents too. |
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Post by braided-rug on Aug 22, 2005 11:23:27 GMT 10
Poor little poppet. Hope she feels better soon. Sounds good re. feeding.
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Admin
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Post by Admin on Aug 23, 2005 1:23:12 GMT 10
www.kodakgallery.com/I.jsp?c=ww11agb.1m2rhzxv&x=0&h=1&y=9k0764 (Kaedy) www.kodakgallery.com/I.jsp?c=ww11agb.2c2id6yb&x=0&h=1&y=-tljlrj (San Antonio) Kaedy is doing great today! She is just on Motrin and doesn't seem to be in pain unless she coughs and then she cries. Tomorrow they are going to switch her back to the Trach that she is used to and then Tuesday they are going to put her back on her home ventilator. She is really back to her normal self and smiling and playing and giving kisses...she is just wonderful!! It is hard to not just scoop her up and hug her, but I still see her wince and I know she is not quite ready for that!! Thank you for all your prayers! Blessings, Kahri
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Admin
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Post by Admin on Sept 2, 2005 23:14:43 GMT 10
Update 5
Hi Everyone!
Sorry for no update for a few days.....
Kaedy is still doing great...but we are still in San Antonio. We are awaiting two things:
1. Her JP drain to come out. We are still waiting for her output to be less than 20cc. This is the drain from inside her body where the surgery was. Today it was looking good to maybe be less than 20cc!
2. One of her incisions has some skin breakdown where there was no muscle underneathe the skin when they closed her up. The doctors want to watch the incision to make sure it does not get worse and that healthy skin takes over. They have her back well padded and we are not allowing her to lay on that part so that it can heal very well.
After those two things are taken care of, we will be on our way home! Thanks for everyone's prayers.
Blessings,
Kahri
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Admin
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Post by Admin on Sept 2, 2005 23:15:21 GMT 10
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